Resource Guide for Chromosomal Abnormalities

RESOURCES

Address: 4301 Connecticut Avenue, NW, Suite 404 Washington, DC 20008

Phone: 1-202-966-5557

Internet address: http://www.geneticalliance.org

Description of services provided: The Genetic Alliance offers information on genetic disorders and the impact of the diagnosis on individuals and families. From the main page, you can search conditions, organizations, and resources.

RESOURCES

Address: PO Box 872 Pine, CO 80470-0872

Phone: 1-888-999-9428

Internet address: http://www.genetic.org

Description of services provided: This website provides support services, a newsletter, and information about sex chromosome variations.

RESOURCES

Address: 1275 Mamaroneck Avenue White Plains, NY 10605

Internet address: http://www.marchofdimes.org

Description of services provided: The March of Dimes provides information on pregnancy and birth defects and gives referrals.

RESOURCES

Address: 666 Broadway, 8th floor New York NY, 10012

Phone: 1-800-221-4602

Internet address: http://www.ndss.org

Description of services provided: The National Down Syndrome Society provides information on genetic disorders and listings of genetic counseling services.

RESOURCES

Address: 330 North Wabash Avenue, Suite 2000 Chicago, IL 60611

Phone: 1-312-321-6834

Internet address: http://www.nsgc.org

Description of services provided: On the National Society of Genetic Counselors website, you can learn more about genetic disorders and find a list of genetic counseling services.

RESOURCES

Address: 2982 South Union St. Rochester NY, 14624

Phone: 1-800-716-7638

Internet address: http://www.trisomy.org

Description of services provided: This nonprofit volunteer organization is a network of families and professionals who are dedicated to offering support to those affected by Trisomy 18, 13, and related chromosomal disorders. You'll find a resource center with fact sheets, a bookstore, membership information, and upcoming events.

RESOURCES

Address: 11250 West Road, Suite G Houston TX, 77065

Phone: 1-800-365-9944

Internet address: http://www.turnersyndrome.org

Description of services provided: The Turner Syndrome Society creates awareness, promotes research, and provides support for all those affected by this condition.

RESOURCES

Address: P.O. Box 268 Lakewood CA, 90714

Phone: 1-888-970-0777

Internet address: http://www.fivepminus.org

Description of services provided: This society encourages and facilitates communication among families affected by 5p syndrome by raising awareness and providing information.

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